“Despite all of that, I don’t “look” disabled… there are no visual cues that I am plagued by chronic pain and fainting spells.
…I can’t help but mull over my experiences with non-disabled people doubting me as I’m en route to meet the photographer for this shoot. Will Sean be able to grasp the nuances of my disability? More importantly, will he care?”
I Have An Invisible Illness. Here’s How One Photoshoot Made Me Feel Seen.
“You didn’t show any signs of EDS when you were little.”
Because I was ‘lying’ when I said running hurt.
Because I was ‘lazy’ when I tried to dodge gym.
Because I was ‘fussy’ when I said big meals made me nauseous.
Because I was doing party tricks when I sublocated all my fingers.
Because I was ‘disruptive’ when i figeted to keep my tailbone in place.
Because I had ‘skin like a wee baby’.
Because I ‘should’ve gone to bed earlier’ when I was sleeping through my play breaks out of fatigue.
Right, and my fainting 2-3 times a month wasn’t a clue at all, either.
knitting in the dark 