cultural problem

devilsmoon:

madeofpatterns:

I think a lot of the autistic and autism communities have this idea that… there’s a type of person called aspie. And those people aren’t ~real autistics~, they just are really good at academic geekery and bad at knowing that people are real.

But there’s this notion that *that* kind of autistic person isn’t really disabled, especially if they can pass.

And there’s a real cognitive subtype that actually *is* associated with receptive language problems, being good at academics and other abstracty things, and being able to pass if you push yourself in certain ways.  But those people are disabled too. 

And I think – those of us who have been pushed to see ourselves as that subtype when we’re not, when we’d never in a million years be capable of that, often end up being somewhat repulsed by people who *do* have that particular cognitive configuration.

And it’s not ok. Because the ableism we face isn’t their fault, and they’re no more free of it than we are. And we need to not be part of the problem.

The aspie hate things people say are not accurate descriptions of *anyone’s* cognitive type. 

This is true and valid and I agree we need to stop eating our own.

Though I want to say something about the aspie subtype. As someone who benefited from that label (and no long IDs as an aspie), I’ve always felt that non-autistics and neurotypicals tend to value one subtype over the other. They usually are the once that sort of enforce this schism. Aspies are portrayed as goofy, cute, white boys who just want to fit in. People see they stereotype of them being good with math and computers as marketable. They seek out IT type aspies. Whilst everyone else gets passed over. The problem is many of them that are articulate, passing and have enough social reading, they end up buying this well constructed lie that they are far more valuable than non-speaking, chronically ill or non passing autists. So they end up throwing us under the bus.

This is not a new phenomena. Nevertheless it’s still fugging awful. My problem is not aspies but the NTs and the allistics that enforce and build  this massive schism up. They want us in-fight, they want the aspies to talk over us over issues, they want  the resentment. This hierarchy is artificial and awful and we need to destroy it.

So yes, they are disabled, but they also benefit a great many privileges too they need to realize themselves that we’re all drowning.

I have no problem personally with the term ‘Aspie’ or people who identify as such, but I stopped using it to identify myself because I realised that it came with baggage. Functioning label baggage. ‘Asperger’, for people who even know the term, tends to be equated with ‘high achiever’. It tends to imply that the person will go far if they find the right career, will succeed in academia if they find the right specialty. It implies a level of competence that I consistently failed to be able to live up to.

Now, my diagnosis was for Asperger Syndrome plus a handful of other things, and don’t get me wrong, I don’t think any diagnostician would diagnose me differently. I am highly verbal, highly literate, and as a child I learnt to pass to a degree and I live with that privilege/curse every day. But I failed out of my last year of high school and four further education attempts because the social stresses and expectations pushed my anxiety through the roof and into burnout so severe I was housebound. I had a handful of minimum wage jobs, one I know I was fired from because of my (then un-dxed) autism, and two that I probably stopped getting shifts from because of my short-term memory issues and my failure to grasp things at times that seemed easy or common sense to those around me.

‘Aspie’, with its connotations of competence behind a quirky, eccentric shell, made those around me – family, social workers, employment case managers – think that I just wasn’t trying hard enough. And that was crushing.

I realised when I started reading about other autistic people, that I always seemed to find more in common with ‘autistic’ rather than ‘Aspie’ autobiographers. Even if our actual life experiences were very different, ‘autistic’ authors seemed to write more about problems I faced, and seemed to more often have a world view closer to my own.

‘Aspie’ began to seem very limited, while ‘autistic’ encompassed the whole of my identity and disability. It had the flexibility I needed to cover my experience.

Add to that, I have a running tally for how many people I once loved and respected who have made the ‘arse burgers’ joke to my face when I disclosed. The first time was a very old and dear friend at my birthday dinner, a handful of months after my diagnosis. At the time, only a few people close to me knew. Every time someone makes that joke it catches me unguarded, and every time it hurts. I will never understand why people think that making that joke when someone is in such an incredibly vulnerable place is acceptable. Every time, it’s as if they think they’re the first person to think of it, and that they’re hilarious. At least the word ‘autistic’ gives me one less vulnerable place than if I use the word ‘Asperger’.

Listening to folks whose speech is unusual

realsocialskills:

This happens a lot, especially for autistic folks with a particular cognitive configuration:

  • An autistic person says something in the most straightforward way they can think of
  • But it’s far from the way most people say it
  • And it doesn’t occur to other people that they’re being direct
  • It’s seen as either the autistic person not understanding something, being presumptuous, or being hilarious

For instance:

  • Alice and Nancy walk into a cafeteria, which is overflowing with different food options
  • Alice (wanting a particular kind of food and not knowing how to find it): Where’s the food?
  • Nancy: Umm, everywhere?

In this example, Nancy thought Alice was just being annoying or funny and didn’t understand what she was trying to communicate. This would have been better:

  • Alice: Where’s the food?
  • Nancy: Which food do you mean?
  • Alice: Food!
  • Nancy: Are you looking for something in particular?
  • Alice: Food!
  • Nancy: Your favorite food?
  • Alice: My favorite food! Chocolate pie! Burger?
  • Nancy: They have both of those things. We will see them when we go through the line.

Or: 

  • Nathan is discussing politics with his son, Arthur
  • Nathan: What does the president do?
  • Arthur: Important stuff. Not like you do.
  • Nathan: You don’t think what I do is important?!
  • (Nathan, telling the story later, uses it as an example of how kids have no filter)
  • What Arthur actually meant was along the lines of “The president is a public figure with a lot of power, and everyone pays a lot of attention to what he says; that’s really different from how other people’s jobs work”.

This would have been better:

  • Arthur: Important stuff. Not like you do.
  • Nathan: What kind of important stuff?
  • Arthur: My fellow Americans…
  • Nathan: Important like speeches?
  • Arthur: Yes. Speeches on TV.
  • Nathan: I don’t make speeches on TV.
  • Arthur: You go to the office. 
  • etc etc

tl; dr: When autistic people communicate things, we often sound strange. Don’t assume that we’re joking or being dismissive or cute just because the way we phrase things is very different from what would feel natural to you. Listen to what we’re actually saying.

Are using stim toys If you’re not autistic appropriative?

fuckyeahstimming:

dearneurotypicals:

dearnonacepeople:

I have ADD and am interested in something to fidget with

not at all, in my opinion. people belonging to many different categories of neurodivergence stim, so any neurodivergent person who wishes may use stim toys.

if anyone feels that i have erred, your contributions are welcome

Stim toys are for anyone who stims.

What I don’t think a lot of people realise is that EVERYBODY STIMS. Everyone. And all in their own way. You swing on your chair? Twirl your hair? Crack your knuckles? Jiggle your foot? Click your pen? Sing or hum to yourself? Wrap yourself in your favourite fluffy garment just because it feels nice? All of these things are stimmy.

Do you know what they call stimming in neurotypical people, particularly babies and toddlers? They call it self-soothing, and it is considered a POSITIVE THING, an important developmental milestone. It is when the child starts to comfort themselves and be less prone to separation anxiety when alone or when their parents leave the room or put them down. Neurotypical kids tend to stim in less and less obvious ways, but lots of people suck their thumbs, well into late childhood or even adulthood. And that’s fine.

What parents, educators and therapists who try to stamp out all stimming behaviour seem to fail to recognise is that stimming performs a very important function in ALL PEOPLE to help them self-regulate. Slinkies? Koosh balls? Stress balls? Rubik’s Cubes? Those little desk sculptures with the swinging balls? All developed for and bought by a largely neurotypical population, and no one would shame an adult for owning or enjoying one of them, even though they’re stim toys, plain and simple.

So do whatever feels right for you and feels best. And fuck anyone who shames you for it, because stimming is a trait that’s common to everyone, even if some forms are more socially acceptable than others.