waterkln:

im going to look Actively autistic when im in college. im gonna flap and bob whenever i damn well please and i will take down anyone who makes snide comments at me, i don’t give a fuck if i make allistics uncomfortable

Be your autistic self, be what makes you comfortable, be what makes you happy and what makes you feel alive. And if being openly autistic is safe for you and you think it will bring you joy, then by all means, flap away, little sibling.

foundbysara:

“He has autism. I’m really surprised he was playing with you.”

This happens sometimes at work, and I’m never sure how to react. A parent (or other adult) will come up to me after I’ve been playing with their child, and point out that the child’s current behavior is really unusual for them.

Sometimes it’s young kids who just seem overwhelmed by their surroundings, and we’ll just sit together for a little bit. I’ll talk about things—their shoes, the weather, the character on their shirt—for little while, and then listen when they start talking. If they start talking—often, they don’t,and that’s okay.

Sometimes it’s a copycat game. They’ll hide from me, and I’ll hide from them. They peek out, and I peek out. They put their hands up, and I put my hands up. When they realize that everything I do is copying them, their actions get more intentional, silly, fun.

Last week there was a young man in our new Thomas the Tank Engine gallery. I talked with him for a minute, and it was immediately clear that he a.) loved trains, and b.) hated eye contact. So I stopped trying to make eye contact, and we played in parallel, not facing each other, but talking about trains, Thomas, the toys he had at home.

And it happened again, the grown-up coming up afterwards and confessing “He’s autistic, he doesn’t usually talk to people.”

And I smiled and said, “Well, it seems like he’s having fun,” because I didn’t know what else to say. And it did seem that way, and that’s great.

But I never know how to react when parents say that to me. They always seem pleased, grateful, even, and I guess they must mean it as a compliment. And if I made their day brighter, and (more importantly) their child’s day brighter, good. That’s wonderful, and it’s what I try to do with everyone who comes to the museum.

But it’s also weird, because—it’s what I do with everyone who comes to the museum. I’m not a therapist, I’m not a specialist, I’m not some mysterious Autism Whisperer. I just try to connect with kids and make their days better. I don’t have special tactics for “dealing with” autistic kids. I don’t even work in an environment where autistic kids are identified as such, except by their parents, after the fact.

So I’m literally treating these children as I would any other human: with cheer, and with kindness, with gentleness, silliness, understanding.

So when the adult says to me, “he never plays this way!” I worry.

Because I am not an extraordinary person. I am not doing anything special—just paying attention to the child, offering lighthearted interaction, responding to their needs and desires as best as I understand them. It’s how I approach every child I work with—hell, it’s how I try to approach every person I know.

So when I hear, “He never plays like this!”

I don’t really know what to say. But I hope with all my heart that its not because he’s never treated like this.

no more – a letter to suzanne wright

mim-lilly:

My favorite part:

You grabbed an autistic child’s face to make her look at you.

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And then something miraculous happened. My girl spoke for herself. “I HATE BEING TOUCHED!” she yelled. God, I was so proud of her. So instead of leading, I followed. I loudly praised her for telling you – with words – not to touch her. I repeated her words to make sure you’d heard them, loudly and clearly, “I’m so proud of you,” I said, “for telling Mrs. Wright that you DON’T LIKE TO BE TOUCHED.”
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It was in the car on the way back home from your house that Katie would explain to her sister that she really does like to be touched, but not without permission by people she doesn’t know. And it was then that she would turn to me, fuming and indignant and say, “Doesn’t that lady run the biggest Autism charity in the world? I don’t get it. Does she even know anything at all about autism?”   

no more – a letter to suzanne wright

neurowonderful:

Wouldn’t it be awesome if there was a pro-Neurodiversity, pro-Autism documentary starring actual autistic advocates?

Wouldn’t it be amazing if this educational film exposed the controversy of Autism Speaks, while at the same time covering topics like the Judge Rotenberg Center and the horrifying society-sanctioned pattern of disabled people being murdered by their caregivers?

Wouldn’t the icing on the cake be an exploration of the Autism Acceptance/Neurodiversity movement through the eyes of autistic people, featuring interviews with Ari Ne’eman of The Autistic Self Advocacy Network, Landon Bryce of thAutcast, artist/author Robyn Steward and autism activist Zoe Gross?

This film exists! The documentary is Citizen Autistic, Produced by William Davenport, and it needs help. William Davenport is currently trying to raise enough money to be able to do a screening tour and bring this incredibly important film to people all over the US. They have an indiegogo campaign here, and their goal is to raise $5000.

This is a big opportunity for the a/Autistic community to spread a message of truth. As William Davenport said, “After screening the film, people have remarked to me, ‘I didn’t even know that adults have autism’.” Right now the loudest voices are the voices coming from Autism Speaks and other pro-cure and anti-acceptance organizations led and directed by non-autistics. But films like Citizen Autistic can be a part of changing that!

Please check out their indiegogo campaign here and consider donating, and please help spread the word! Citizen Autistic also has a facebook page here. To see more excerpts from the film you can see William Davenport’s vimeo page here.

Even though my funds are very limited, I just donated $25 to this because the $25 perk is a DVD copy, and as an Australian, it’s likely that this is my only legit way of getting to see this film. So if you’re an international autist who wants to see Citizen Autistic and can afford it, donating is a great way of not only helping out, but allows you to experience the film, too.

In short, what allies do is guide the conversation from a place where we are at best peripheral to a place where Autistic perspectives are central. Allies help us in our fight for a seat at the table so that once we get there we have the energy to make good use of it.

But here’s the thing: if you are trying to be an ally, you need to recognize that it’s not about you. If you are talking over Autistics or otherwise bringing the discussion back to center on ‘allies’, you are not a real ally. Real allies tell these people “don’t do that shit. This isn’t about you.”

If you are really an ally, you are not going to make it about your feelings. Declaring yourself an ally isn’t something you get to do. If you are really fighting with us and for us, it should be because it’s right, not because you want an “Ally!” sticker for your Good Person collection.

A conditional ally, by the way, is not an ally at all. Anyone who says they’d be for your cause if you weren’t so mean/if you personally educated them on every issue/if you were more appreciative is not an ally. Again, it’s not about the privileged group’s feelings here-it’s about equal rights and about our very existence. My exasperation with nearly everything does not reduce my personhood or the fact that I should have equal rights.

Let me expand on that a bit: if you’re only for my rights when I give you warm fuzzies, you aren’t at all for my rights. I’d rather know this in advance-before I put effort into you. Building strong allies from relatively clueless people who want to do the right thing is one hell of an energy investment. I do not have the time or the energy to squander on people who are ultimately faux allies.

Kassiane S. http://autisticadvocacy.org/2012/10/what-is-an-ally/ (via theaubisticagenda)

Autists are the ultimate square pegs, and the problem with pounding a square peg into a round hole is not that the hammering is hard work. It’s that you are destroying the peg.

Paul Collins (Author of Not Even Wrong: Adventures in Autism)