To every Autistic person that’s still trying to learn to love themselves: Unlearning internalised ableism is really hard, it can be a long term process and that’s totally alright.
You are doing great and I am so proud of you.
Tag: autism acceptance
Sparrows and Penguins
(or, An Anonymous Guest Blogger Stops By)
Imagine that you’re a sparrow, living in a family of sparrows in a town of sparrows in a world of sparrows.
But you’re kind of a shitty sparrow. Kind of the worst sparrow, actually.
You can’t fly. You’ve been to doctors who have prescribed medicine to help with flying. But you still can’t. You try every day, and every day you fail and this thing which all the other sparrows tell you is critical.
For a while, you stop trying. Failing every day just wore you down and you couldn’t do it anymore, so you stopped trying to fly. It was nice in some ways, but you felt guilty because you weren’t raised to give up. It made a rift with your family. Flying is an important activity that sparrow families do together. Isn’t your family important to you? Don’t they deserve for you to at least make the effort?
So since it’s nothing medically wrong with you, you go to a therapist, who diagnoses you with a phobia of flying. You work on overcoming your fear. You’re lucky, your family is very accepting of mental illness (other sparrows are not so lucky, and it hurts your heart to think about that). They appreciate and admire how hard you’re working. They try to include you, so instead of getting together and flying, sometimes they get together and all sit in their nests. That sort of sucks too, but it’s a definite improvement.
You continue to try, and fail, to fly. You try harder. You try as hard as you can. Sometimes you can’t even make yourself flap your wings, it’s just such pointless bullshit and you feel like you’ll never succeed. Sometimes you go up on a chair and jump off and flap real hard and go splat anyway.
Sometimes mean birds make fun of you because you’re a terrible screw-up.
For 26 years, this is what your life is.
One day, almost out of nowhere, as an afterthought, an aside, something barely worth mentioning because it is so obvious, a doctor says, “by the way, you’re a penguin.”
Holy shit. You’re not a failure. You’re a penguin. You’re not lazy or stupid or weak. You don’t have messed up values. You’re a penguin. You have always been a penguin.
There’s nothing wrong with you, you’re a beautiful penguin. The most perfect penguin. But it’s just a fact, penguins can’t fly.
Now when you’re with you’re sparrow friends and they’re all sitting in nests, you sit in a bucket of ice. Mostly you bring your own. Some bird restaurants are really accommodating and will bring you a bucket of ice to sit in. Sometimes mean birds give you shit about your bucket, but it doesn’t hurt as much as it did before, because you know you’re a penguin and you’re just exactly what a penguin is meant to be.
You give yourself permission to stop trying to fly. Not failing all the time improves your mood and overall function. You finally feel confident declining when invited to flying outings. You don’t waste the energy feeling guilty about it.
You love your family of sparrows, but you also find a whole community of penguins to love too. Things you thought were just you, like preferring fish to bird seed, things you thought you were totally alone in and wrong for, are common and accepted. Some are even admired. Your new penguin friends think your flippers and chubby penguin belly are lovely. You bond over how and when you discovered you loved swimming.
Knowing you’re a penguin means knowing where you fit in a world you never felt like you fit into. It means all the things penguins can’t do, it’s not a personal failing when you can’t do them. You’re not supposed to be able to. You can do other things instead. Sparrows are actually quite poor swimmers. You feel good about the things you excel at.
This is why I think labels are important. This is why I think “we’re all birds, let’s focus on our similarities instead of our differences” is harmful. This is how my autism diagnosis was like breathing, after holding my breath for 26 years.
I was miffed that there was no new ThinkGeek Neurodiversity shirt today, so I made a thing. Not that this needs to go on a shirt, but making the thing was fun and surprisingly stimmy and nice to look at so yeah, ‘s all good.
This is my first year after lots and lots of struggle and insecurity and stuff and finally understanding why my brain works the way it does. I’ve seen and experienced last year’s April. It was damn hurtful at times, even for someone pretty new to all the A$ fear mongering. Awareness? No, thanks. Acceptance? Yes! And celebrate the heck out of neurodivergence. So I made a thing that makes me happy. Maybe it makes someone else happy, too.
[Brain made of tree branches, with the word neurodiversity below it.]
Society demands that we keep overcoming, overcoming, overcoming. But we don’t have to. Nowhere is it written that to be a really real human you have to brute force your way through your limits. Nowhere is it written that not doing so makes you less worthy. For most people, constantly refusing to acknowledge that you have limits is seen as a problem. We all have limits & we are supposed to acknowledge them, know where they are, work within them.
When disabled people, Autistic and non-autistic, say that they use identity-first language to refer to themselves, a common retort is “I don’t understand why you would define yourself by your disability.” To me, this doesn’t make sense. I call myself disabled because I don’t think my disability needs to be held at arm’s length, not because I believe that I’m autism on legs.
(As with my other traits, I refer to my disability with an adjective-noun construction which is common to the English language. I would also describe myself as a long-haired woman. So far no one has come forward to demand that I instead refer to myself as “an individual with long hair,” or accused me of “defining myself by my hair length.”)
I’m starting to think that when people say “defining yourself by your disability” they really mean “talking about yourself in a way that reflects the belief that your disability is not detachable.”
Autism’s First Child
As new cases of autism have exploded in recent years—some form of the condition affects about one in 110 children today—efforts have multiplied to understand and accommodate the condition in childhood. But children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism. And his long, happy, surprising life may hold some answers.This article was written 2010 and some questionable language terminology is used, but it is an interesting read despite that.
“As new cases of autism have exploded in recent years—some form of the condition affects about one in 110 children today—efforts have multiplied to understand and accommodate the condition in childhood. But children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism. And his long, happy, surprising life may hold some answers.”
they call themselves
full of hopethey hope some day
you will become humanwith help
with caring
with love
with proper training
they hope someday you will become
The Right Kind of Personyou already are.
you already arethey hope for all
the wrong things
You don’t have to like being disabled
This is what I think disability acceptance means:
- Facing what your abilities are and aren’t
- Accepting yourself as already having value
- Living your life now and doing things you care about.
- Not putting your life on hold waiting for a cure
But, some kinds of acceptance talk end up putting destructive kinds of pressure on people. And I think:
- It’s ok to like or dislike being disabled. It’s ok to like some aspects of your condition but not others
- It’s ok to want treatment and to be frustrated that it isn’t available
- It’s ok to pursue treatment that *is* available
- It’s ok to work hard to gain or keep certain physical or cognitive abilities, and to be happy or proud that you have them
- It’s ok to decide that some abilities aren’t worth keeping, and to be happy or proud about moving on from them
- All of those things are very personal choices, and no one’s business but your own
- None of them are betrayals of acceptance or other disabled people
The point of acceptance is to get past magical thinking.
It means seeing yourself as you actually are, without being consumed by either tragedy or the need to focus on overcoming disability. It means accepting where you are, and living now, without putting your life on hold waiting for a cure.
Acceptance creates abilities. Acceptance makes it easier to be happy and to make good decisions. But acceptance does not solve everything, and it does not come with an obligation to love absolutely every aspect of being disabled.
different roads to success
{image is a photo of Brooke standing on Luau’s shoulders on the beach in Newport, RI. She looks as though she is flying. Photo courtesy of Connerton Photography’s magic lens. All rights reserved.} …