Unlearning How White People Ask Personal Questions

elodieunderglass:

jabberwockypie:

beautytruthandstrangeness:

casual-isms:

http://www.samefacts.com/2014/05/culture-and-civil-society/unlearning-how-white-people-ask-personal-questions/

Holy shit. I have ALWAYS thought the people around me were being unconscionably intrusive and power-playing in their starter conversations and they told me I was antisocial and oblivious to culture norms. Turns out, maybe I’m just from a different culture.

Huh.  This is really interesting.

I’m disabled, and it’s really uncomfortable to field that question about work in a social setting. (”Why no, random person at the yarn store, I don’t want to tell you about that, or about the nature of my disability”.)

I like his
“So how do you spend your time?”

question better.

A formative experience in my early twenties was when I was in a mixed group of people and we were instructed to pair off and get to know each other. My partner and I looked at each other glumly. I was a young white girl who had arrived from another country and was painfully lost and alone. He was a magisterial black British man in his forties with a greying beard and interesting clothing. He looked at me with the expression of a socially awkward introvert being asked to do a group exercise, so I tried to Hlep.

“So um what do you do,” I started, and then I saw this most complicated and weary and sad expression on his face and just yelped “WAIT no I’m sorry I’m SO sorry I didn’t actually want to ask that! I meant! AH! What do you love!!!”

“Ugh,” he said. “Well, I really love pottery.”

“I ALSO LOVE POTTERY,” I yelped like a Hleping chat-robot.

“I am assisting my disabled elderly father in his dying process, and I am not currently employed,” he said.

“I have just immigrated and I am not currently employed,” I said, gratefully. “What kind of pottery do you like.”

“The kind that is rough on one side and shiny on the other,” he said.

“ME TOO,” i said.

The leader came over, “how are you getting on?”

And we both barked, in the identical tones of introverts being asked how they are getting on, “WE LIKE POTTERY.

We took two pottery classes together, made some rough/shiny objects and never spoke again.because he did not believe in the internet, and at the time I did not believe in phones.

But I think about him, and that exchange, all the time. I didn’t even want to know what he “did.” I just felt like it was what adults say. And if I hadn’t recovered the question I wouldn’t have known Hermes and made a bunch of really fucked up pots with him

See, I know I ask the wrong questions at times, and I know some of that is due to WhitenessTM, but some of it is because I’m an Autistic person trying hard to Do Conversation by trying to remember what neurotypical people talk about and HOW they talk about it, which is heavily informed by media, because how else do you learn anything? Basically I’m nearly 37 and I know I fuck up about 60% of the time but I’m trying to be a person and not be racist and ableist. And I’ll never stop trying, because social interactions do not come with a script, so every new conversation with a friend or an acquaintance or a person at a store is like stepping into deep water and trying to remember how my limbs work so I don’t drown. I apologise in advance if my flailing injures you; it’s a constant battle, but I’m never going to NOT try to do better.

Executive dysfunction life hack

dancinbutterfly:

anachronistic-cat:

naamahdarling:

nintendogamergirlexe:

acemindbreaker:

ponetium:

star-anise:

roachpatrol:

jumpingjacktrash:

the-rain-monster:

naamahdarling:

lenyberry:

star-anise:

feathersmoons:

star-anise:

feathersmoons:

star-anise:

lemonsharks:

star-anise:

Instead of telling yourself, “I should get up,” or “I should do this,”

Ask yourself, “When will I get up?” or “When will I be ready to do this?”

Instead of trying to order yourself to feel the signal to do something, which your brain is manifestly bad at, listen to yourself with compassionate curiosity and be ready to receive the signal to move when it comes.

Things I did not actually realize was an option

What’s amazing is what happens when you do this with children.  I hit on it when working at the foster home, where nearly all our kids were on the autism spectrum, and they weren’t “defiant” around me because I said things like, “How long do you need to stand here before we can move?” and “Come into the kitchen when you’re ready” instead of saying, “Stop staring out the window, let’s go,” or “Come eat dinner,” and interpreting hesitation as refusal to obey.

I have also definitely found that doing the “okay when I finish counting down from twenty is getting up time” has been useful.

Yup, that’s way better for toddlers and younger kids.  It helps when they don’t have the self-awareness, attention span, or concept of the passage of time to estimate when they’ll be ready by themselves.

Oh I meant for me. XD Saying it to myself.

WELL OKAY WHOOPS XD I should not have been overspecific, I was just thinking about teaching this stuff to the parents at my job and your reblog made me immediately think of you with Banana and the kidlets.

Another hack: when you want to get up but are stalled by your brain and frustrated – stop. Breathe. Think about what you want to do once you’re up, without thinking about getting up. Treat it like a fantasy, no pressure, just thinking about something you’d like to do in the future. Instead of thinking “I should get up” over and over, think about having a bagel for breakfast, or getting dressed in your soft green sweater. Imagine yourself doing the thing.

I find that exercise often side-steps the block and the next thing I know I’m out of bed and on my way to doing the other thing I thought about.

Works for other things too, if you’re stuck on one step and having a hard time doing it, think about the step after that. Need to do laundry and you can’t get yourself to gather up your dirty clothes in the hamper? Think instead about carrying the hamper full of dirty clothes to the laundry room. And when you get to that next step, if you get stuck again, think about the step after it – you have a hamper of dirty clothes that needs to be put in the wash, let your subconscious handle the “carry hamper to laundry room” step while you’re thinking about the “putting them in the wash” part.

YMMV of course, and this doesn’t even always work for me (particularly not when I need to do a collection of tasks in no particular order, like packing for a trip… “pack socks, pack underwear, pack toothbrush, pack pants, pack shirts” is the kind of non-linear task list where this trick doesn’t help at all), but it’s something I’ve found helpful often enough.

This is one of the most beautiful threads I’ve seen on Tumblr simply because it deals so compassionately with an issue so many of us have and can barely even articulate to ourselves, let alone to anyone else. ❤

I think I get overwhelmed from the thought of all of the consequent steps, so maybe I’ll do the reverse of the advice above and try to focus on the first one.

@the-rain-monster i was just about to say something similar. that can work too sometimes. instead of going “ugh i need to eat something” for four hours, i try to focus on each step in turn.

and i mean each TINY step. just getting out of my chair has this many steps:

  1. pause music
  2. remove headphones
  3. hang headphones on laptop screen
  4. pick up laptop
  5. leg-bend recliner footrest shut
  6. set laptop aside
  7. stand

and i reckon that’s why i get stuck on it; because i’m trying to treat it as one thing, while executive dysfunction is treating it as seven things, and choking on trying to skip to step seven.

concurrent with this is a method i call ‘junebugging’. which is where i go to the location of the thing i want to do, and just sort of bump around the region like a big stupid beetle until the thing somehow accidentally magically gets done. this is an attempt to leverage ADHD into an advantage; i may not have the executive function to make myself a sandwich on purpose, but if i fidget in the kitchen long enough, some kind of food is going to end up in my mouth eventually. and hell, even if i fail on that front, i will probably have achieved something, even if it’s only pouring all my loose leaf tea into decorative jars.*

@star-anise please may i give you an internet hug *hug!* because god how i wish anyone had known to do that for me when i was a kid. my childhood was one big overload, and like 99% of the huge dramatic meltdowns that made me the scapegoat/laughingstock/target of my entire elementary school were simply due to people not giving me time to process the next step, and interpreting a bluescreen as defiance/insult.

*this happened when i was trying to do dishes actually but the principle is sound

yeah i absolutely echo what j’s saying about the steps, it’s a lot like that for me too. i get overwhelmed at the prospect of something that should be simple, and have to slow down and sort out how many steps it’s actually going to take, and what a complicated endeavor it actually is, even if no one else thinks so. 

also, i thought i should put in: try to honestly figure out what you’re averse to, that makes things so tough. making a whole bunch of decisions really fast? the potential of things to make a horrible noise? the shame of failure? having to put down what you’re doing now? having to clean up whatever it is you might go do when you’re done?

for instance, for me, the difficulty rating on anything goes waaaay up when a step of a task is ‘go somewhere people will look at you,’ which is for me about the unpleasantness equivalent of ‘jump into a very cold swimming pool right now’. you know you’ll be fine and even have fun once you’ve settled into it, but it still takes a lot of shuffling around and bracing yourself first to go for it. and some days you just don’t fucking want to go swimming.

i discounted this factor for years because i wouldn’t admit that i was so daunted by something so silly as as people looking at me. but, now i know what i’m so aversive about, i can factor it in to plans, and work around it, and be kind to myself. for instance, i was never able to get fit since highschool PE, because i couldn’t make myself go to a gym, or even out jogging. once i figured out the big problem wasn’t avoidance pain or difficulty, it was avoidance of doing a New Thing that i was Bad At in front of Unknown Quantities Of Strangers, which is like a triple threat of stressors, i started working out quietly and safely in my room at night, and i’ve been doing really good on it! 

Absolutely loving the tag #you don’t make a broken car work by yelling ALL THE OTHER CARS WORK FINE

I always picture myself doing the thing before I do it, checking possible outcomes. It is good for my executive disfunction because my brain thinks “Ah, O already did it, just repeat”, and sometimes it works. Also, it helps me to to avoid mistakes. The drawback is that everything takes more spoons because in my brain I do everything several times. And I developed this before I knew what Executive Disfunction was … I was just trying to survive.
I was actually surprised to learn that most people “just do” things. How is that even possible?

I find usually when I’m stuck, it’s because I’ve grouped too many tasks together, so I go “of all the things I intend to do when I get up, which is most crucial?” and I decide to do only that one thing, never mind all the other things I was going to do.

I know this post isn’t for me, but I think I’m going to use it too. For like, getting out od ved and doing homework, because the only modivation for either is that if I don’t, I’ll be in trouble. Maybe I should focus on the result of the action rather than currently doing it? Idk. I almost never can get out of bed while still kinda tired or upset when my mom isn’t there to tell me I have to, and somedays I just can’t do homework. Does anybody know if the tactics above also work for when you have a lack of modivation? I don’t have anything wtong with me, but I am easily distractible, and I tend to abandon work for things that are more fun and make me happy. If you don’t want someone changing the subject though, I’ll get off your post. Y’all are just so observant. Like, seriously, looking at the big picture? That’s hard. I think we all need to do that.

This thread got even more amazing since I last reblogged it.

imma try this next time i have to fight my ED

Helpful.

But also like, god, there are people who just… do things. They decide to do things. And then do them.

Cannot imagine.

I didn’t realize my ADHD was more that “I am loud, can’t pay attention, get hyperfocused, am very smart and get bored easy.” until I got to tumblr.

Now it’s like “Wait. Hang the fuck on. All these things I can’t get right unless someone is mad at me or I’m in a real crisis are my ADHD?”

The lack of explanation I have about what this really means, when I’ve had a diagnosis 21 years… it’s tremendous. It is.

I just thought life was this hard for everyone and I was just… weak. God. Just god.

things I wish autism research actually tried to figure out:

acemindbreaker:

fictions-stranger:

adventures-in-asexuality:

absynthe–minded:

  • why caffeine works for some of us, but not all, and even then it often depends on the way you take it and the dosage
  • how come all of us have gastrointestinal problems?
  • addendum to the above: what exactly are our gastrointestinal problems? are we genetically more likely to have autism be comorbid with gluten sensitivity/colitis/IBS/lactose intolerance/whatever else or is it something completely different? is it psychosomatic? the fuck
  • okay but how does being sensory-seeking work. and what does stimming do to your brain. what neurological function are we facilitating with flapping hands and rocking back and forth and spinning? wouldn’t it be great if we had a serious long-term study of the brain on stimming?
  • are you more likely to be autistic and LGBT?
  • what are things we do better than neurotypicals?

but no it’s always “how do we train the animals to be something they’re not” or “but what made you this way??” or “Time To Find A Cure”

  • why do we all have sleep disorders
  • what’s up with the joint problems
  • and the faceblindness
  • what are the communication patterns here? how come I can meet one autistic person and immediately grok how they communicate, and be confused by another, but all neurotypicals are confusing? what’s going on with that?
  • how much of what we currently recognise as ‘autistic symptoms’ are actually ptsd symptoms? or autistic ptsd symptoms?

ALL. OF. THIS.

OK, so I decided to check out which of these had been researched and what they found.

Caffeine – not much, but this study looks interesting. It suggests that if you’re not a regular caffeine consumer, caffeine might temporarily make you act less autistic.

Oh, hey, this study has a potential answer to both caffeine response and sleep problems! There’s apparently an enzyme that affects both caffeine and melatonin metabolism.

GI issuesthis study didn’t find a link. The rate of GI issues was 9% for both autistic and NT children. The most common GI issues for both groups were food intolerance, usually lactose intolerance.

This study found a much higher prevalence of GI issues in autistic kids (17%), although they didn’t compare them with NTs. They also suggest that there may be a link between regression and GI issues, and confirm yet again that the MMR vaccine has nothing to do with autism. The most common GI issue they found was constipation, followed by diarrhea and food allergies.

This study compared GI issues between autistic kids and NT siblings. They found that 83% of the autistic sample and 28% of their siblings had at least one possibly-GI-related symptom. They also give data on specific GI symptoms, such as gaseousness (54% of autistics and 19% of siblings), abdominal discomfort (44% of autistics and 9% of siblings), and so forth. They found 20% of autistics and 2% of siblings had three or more poops per day, 32% of autistics and 2% of siblings had consistently watery poops, and 23% of autistics and none of their siblings had large changes in consistency. Also, apparently parents felt that 49% of the autistics and none of the siblings had particularly foul-smelling poops. And another for the sleep question – this study found 51% of autistics and 7% of siblings had sleep problems, with sleep problems being more common in autistic kids with GI issues.

Stimming and Sensory-Seeking – I couldn’t find much. This study I found is interesting, but it’s about more OCD-like compulsions, not actually stimming.

Oh, here’s something. A big detailed review of neurophysiological findings of sensory processing in autism.

LGBT – I’ve written up stuff about this elsewhere, but in short, autistic people, especially AFAB autistics, are definitely more likely to be asexual, bisexual, kinky and trans. Some relevant studies here, here, here, here, here, here, and here, and there’s plenty more to be found.

Autistic Strengths – Well, Laurent Mottron and his team, including autistic rights advocate Michelle Dawson, have done a lot of research on what they term ‘enhanced perceptual functioning’, which they theorize explains the Block Design peak sometimes seen in autistic people. (Block Design is one of the subtests of the Weschler’s IQ test, and autistic people often show a relative strength on this test relative to other subtests on this test.) In general, I highly recommend looking at their research. It really shows what can happen when an autistic person gets involved in autism research.

This study by a different research team finds that children gifted in realistic still-life drawing have higher rates of repetitive behavior typical of autism (though none of their sample were actually autistic), and show similar visuospatial profiles to autistic kids.

This study finds that perfect pitch is associated with autistic traits. On the AQ, musicians with perfect pitch scored higher on the imagination and attention-switching subscales than musicians without perfect pitch and non-musicians. This study found a subset of autistic kids have extremely good pitch perception, with no relationship to musical training.

People in STEM fields are more likely to be autistic or have autistic relatives, especially mathematicians. (Which probably comes as no surprise to anyone who’s spent time in the math department of any university.) This study also finds that autistic kids tend to be better at math.

Sleep – as a couple studies above mentioned, sleep issues in autism could be related to melatonin metabolism or GI issues. This study found that 53% of autistic kids, 46% of kids with intellectual disabilities and 32% of NT kids have sleep problems. Autistic kids are both slower to fall asleep and more likely to wake up early than NT kids.

This study found a correlation between autistic traits and sleep problems in autistic kids. Repetitive behavior is related with being slower to get to sleep and not getting as many hours of sleep per night; communication problems are related to being slower to get to sleep, not getting as much sleep, and parasomnias (night terrors, restless leg syndrome, etc); and social differences are related to being slower to get to sleep, not getting as much sleep, waking up at night, parasomnias and breathing problems while sleeping.

This study found a strong correlation between sleep problems and sensory hypersensitivity among autistic kids. And this study found that autistic and/or intellectually disabled kids showed strong correlations between poor sleep, anxiety and behavior problems.

And this study found that 67.9% of autistic kids have sleep problems, and parents of kids with sleep problems were under more stress. Boys and younger children had more sleep problems.

Joint problemsThis study found that people with Ehlers-Danlos Syndrome, a connective tissue disorder that causes joint hypermobility, were more likely to be autistic. (And also to have mood disorders and attempt suicide.)

This study suggests that people with joint hypermobility have larger amygdala and various other brain structural differences, which was correlated with anxiety and higher sensitivity to internal body sensations. And this study found that 31.5% of people with ADHD and 13.9% of NTs have benign joint hypermobility syndrome.

FaceblindnessThis study confirms that prosopagnosia (faceblindness) is more common among autistic people, with 67% having some degree of facial recognition difficulties.

This study reviews three theories about why autistic people have prosopagnosia, and concludes that the most likely of the three theories is the idea that avoiding eye contact impairs face recognition.

This study found that autistic people are slower to notice faces in scenes, and pay less attention to faces.

The last two questions I’m not really sure where to start.

growing up autistic / growing up gaslit

theoriginalmkp:

I.

this is the first lesson you learn:
you are always wrong.

there is no electric hum buzzing through the air.
there is no stinging bite to the sweetness of the mango.
there is no bitter metallic tang to the water.

there is no cruelty in their laughter, no ambiguity in the instructions, no reason to be upset.
there is no bitter aftertaste to your sweet tea, nothing scratchy about your blanket.

the lamps glow steadily. they do not falter.

II.

this is the second lesson you learn:
you are never right.

you are childish, gullible, overly prone to tears.
you are pedantic, combative, deliberately obtuse.
you are lazy, unreliable, never on time.

you’re always making up excuses, rudely interrupting, stepping on people’s shoes.
you’re always trying to get attention, never thinking about anyone else, selfish through and through.

it’s you that’s the problem. the lamps are fine.

III.

this is the third lesson you learn:
you must always give in.

mother knows best. father knows best.
doctor knows best. teacher knows best.
this is the proper path. do not go astray.

listen to your elders, respect your betters, accept what’s given to you as your due.
bow to the wisdom of experience, the education of the professional, the clarity of an external point of view.

what do you know about lamps, anyway?

bizarre neurodivergence things

allllltheautism:

headphones-and-tea:

h-oney-b-ones:

no-spoons-given:

authenticautistic:

goldenbonnies:

  • Nesting
  • Hoarding things
  • Taking things apart
  • Wandering
  • Shitty memory
  • Needing pressure on your body to sleep

“why are you inside the blanket”

“you don’t need that many ????”

*takes pens apart constantly*

“so you mean to tell me you go to town to walk around the shops and that’s it?”

*in a familiar area* “where to ____” “idk sorry”

*tries to balance weighted lap pad on my shoulder as I sleep*

Fucking mood

We’re all just confused, vaguely nomadic dragons

I support this theory!

Reblog if you’re a confused, vaguely nomadic dragon, too

autasticanna:

“uwu but if there was a cure for autism nobody would force you to-

Bullshit. Yes the fuck they would.

Want to get hired? Oh, you have autism? Well, we can’t hire you unless you get cured.

Want to get paid? Oh, we’re legally allowed to pay you less because you’re autistic. We can pay you a reasonable amount when you get cured!

Need accommodations? Why don’t you just get cured instead? 

You know, you wouldn’t need all this therapy and assistance if you just got cured. You should just get cured!

We don’t need special care programs for autism! There’s a cure available! Just get it!

This isn’t covered by your healthcare because autism is a pre-existing condition, sorry!

My child was autistic and we didn’t want him to be, so we cured him! He didn’t want or ask for it, but we did! 

Look, autism can’t be cured. But if it could, that cure would would absolutely not be a choice. It would just be disguised as optional. 

Look at the danger already for people of colour, disabled people, women, nonbinary people, transpeople, etc. if they are labelled noncompliant by medical or benefits services. Tell me not consenting to be ‘cured’ wouldn’t land you in it. Tell me that they wouldn’t make being ‘cured’ conditional for lighter sentencing in the court system, the way some courts still, in 2018, make sterilisation an ‘option’ for people charged with repeat offences. Tell me they wouldn’t exclude uncured autistic people from public housing, education and support services. Tell me again, and then go and look at history. See if you can convince yourself it won’t happen again, when we have Nazis marching in the streets and eugenicists running for election who openly call for murder of disabled people because they’re a drain on resources. Tell me that if there was a cure, it wouldn’t become a genocide.