Today’s weather

On the one hand I feel like a human today because it’s 27C not 44C. I already did a few household things like folding laundry, doing dishes and sorting out the raw meat for the dog’s food for the next few days.

On the other I feel twitchy, dissociative, raw on a sensory level, and keep flapping and shaking my hands because I feel like I could float away if I don’t work out where my body is.

So, there you go. That’s my reality today.

aplpaca:

I made a shirt design for that one post since some people asked for it.

You can buy it in different shirt styles and colors on my Redbubble (also on mugs, pillows, and some other stuff if anyone’s interested)

 http://www.redbubble.com/people/aplpaca/works/25065826-autistics-rock

Thank you, @aplpaca! I reblogged the original text post with a covetous desire for a shirt with the slogan on, and next thing I knew, they’d replied with a gorgeous design and a redbubble link! I’ve ordered mine – a fitted womens tee in dark purple. (That was my second choice. Redbubble’s racerback tanks don’t cater for girls with chests like mine, apparently!) But I’m still totally wearing the tee to the gym, even if it’s hotter!

Coping because of you

Someone on the stream put up a PostmodernJukebox video this morning and I’ve fallen down a Youtube hole and can’t get out. For real, this has saved my life on one of the hottest days this summer when we’ve wound up minding my nephews because my baby niece had another seizure (after the doc said last month she’d probably never have one again). So, whoever it was put that vid on, thanks because I’m not melting down, I’m grinning and happy flapping along with the best ones.

Question about Tangles

Thinking about buying a Tangle for my nephew for his birthday later this year after he showed interest in my Tangle Therapy. I’m leaning towards a Tangle Original Textured, because he’s got little siblings and I think that’s safer than buying a Jr which has tiny pieces that could be picked up by baby sis.

However, I’ve never owned an Original, so, if anyone out there has, could you advise me if this is a good choice, or just let me know what you think of the Original?

Sparrows and Penguins

candidlyautistic:

(or, An Anonymous Guest Blogger Stops By)

Imagine that you’re a sparrow, living in a family of sparrows in a town of sparrows in a world of sparrows.

But you’re kind of a shitty sparrow. Kind of the worst sparrow, actually.

You can’t fly. You’ve been to doctors who have prescribed medicine to help with flying. But you still can’t. You try every day, and every day you fail and this thing which all the other sparrows tell you is critical.

For a while, you stop trying. Failing every day just wore you down and you couldn’t do it anymore, so you stopped trying to fly. It was nice in some ways, but you felt guilty because you weren’t raised to give up. It made a rift with your family. Flying is an important activity that sparrow families do together. Isn’t your family important to you? Don’t they deserve for you to at least make the effort?

So since it’s nothing medically wrong with you, you go to a therapist, who diagnoses you with a phobia of flying. You work on overcoming your fear. You’re lucky, your family is very accepting of mental illness (other sparrows are not so lucky, and it hurts your heart to think about that). They appreciate and admire how hard you’re working. They try to include you, so instead of getting together and flying, sometimes they get together and all sit in their nests. That sort of sucks too, but it’s a definite improvement.

You continue to try, and fail, to fly. You try harder. You try as hard as you can. Sometimes you can’t even make yourself flap your wings, it’s just such pointless bullshit and you feel like you’ll never succeed. Sometimes you go up on a chair and jump off and flap real hard and go splat anyway.

Sometimes mean birds make fun of you because you’re a terrible screw-up.

For 26 years, this is what your life is.

One day, almost out of nowhere, as an afterthought, an aside, something barely worth mentioning because it is so obvious, a doctor says, “by the way, you’re a penguin.”

Holy shit. You’re not a failure. You’re a penguin. You’re not lazy or stupid or weak. You don’t have messed up values. You’re a penguin. You have always been a penguin.

There’s nothing wrong with you, you’re a beautiful penguin. The most perfect penguin. But it’s just a fact, penguins can’t fly.

Now when you’re with you’re sparrow friends and they’re all sitting in nests, you sit in a bucket of ice. Mostly you bring your own. Some bird restaurants are really accommodating and will bring you a bucket of ice to sit in. Sometimes mean birds give you shit about your bucket, but it doesn’t hurt as much as it did before, because you know you’re a penguin and you’re just exactly what a penguin is meant to be.

You give yourself permission to stop trying to fly. Not failing all the time improves your mood and overall function. You finally feel confident declining when invited to flying outings. You don’t waste the energy feeling guilty about it.

You love your family of sparrows, but you also find a whole community of penguins to love too. Things you thought were just you, like preferring fish to bird seed, things you thought you were totally alone in and wrong for, are common and accepted. Some are even admired. Your new penguin friends think your flippers and chubby penguin belly are lovely. You bond over how and when you discovered you loved swimming.

Knowing you’re a penguin means knowing where you fit in a world you never felt like you fit into. It means all the things penguins can’t do, it’s not a personal failing when you can’t do them. You’re not supposed to be able to. You can do other things instead. Sparrows are actually quite poor swimmers. You feel good about the things you excel at.

This is why I think labels are important. This is why I think “we’re all birds, let’s focus on our similarities instead of our differences” is harmful. This is how my autism diagnosis was like breathing, after holding my breath for 26 years.