Hi! Quick comment on your post (Replies RIP): it was beautifully written. I don’t know if it would help, but some things I do to cope on bad days – I safely trolled the town in my car and found unpopulated spots/learned the school times to avoid kids for walks and music or no I keep my headphones in & sunglasses on. I HATE errand days & in a perfect world only do one per day (NEVER the supermarket omg). Bravo for you guys for accomplishing it all at once & having a system!

Hi! Thanks for reading my post. We don’t have much choice about the
all-in-one-day thing – we live an hour and a half from the nearest big
town. So there’s three hours driving just to go and buy something, so
getting it all done together is the only way that we can afford it, both
in energy levels and in petrol. When we lived closer to civilisation
we’d space things out more, but this is the best way we’ve found to do
things living remote.

My village is very quiet – small population
of maybe 120 at most, so I might pass a couple of cars or a tourist or
two or a few people outside the pub, but apart from that it’s fairly
solitary, and if I really don’t want to meet anyone, I walk out bush
rather than sticking to the roads. I have headphones, Irlen tints that
are fairly dark, and a hat this time of year since it’s summer.

Celebrating the Bare Minimum: Why #Adulting is a Positive Thing

I read an article this week that basically scorned the whole #adulting tag as people wanting applause for doing what’s required of them as adults, and how they should get over themselves. Sure, I can understand how people might find it annoying, but I’d like to throw another light on it.

I’m an adult. I’m actually older than the article writer. I’ve been living out in the real world beyond my mother’s house since I was twenty-one. I rent a house. I have a car. I pay my bills. I’m also disabled. My partner of fifteen years is disabled, too.

My partner looks like an average woman in her early thirties. If people saw her out in public, they might question why we have a disabled placard for our car. If they saw her cane, they might immediately put it down to her being overweight. They can’t see the connective tissue disorder she has that makes her joints prone to dislocations, her balance problems, her low blood pressure that causes fainting spells or her chronic pain and fatigue.

My own disabilities are more subtle. Physically, I’m able. Unless I had a panic attack or meltdown in front of someone, or wore one of my neurodiversity pride t-shirts, they wouldn’t know that I’m living with autism, depression and severe anxiety. I pass well in casual interactions. I’m someone that people would assume had no reason to be unemployed, or to have failed to finish high school. But I’m on disability for very good reasons.

Living as we do, at home just about every day in a small village in a rural area, I imagine most people would expect our house to be perfect. After all, what else are we doing all day? I’ll tell you right now – it’s not. We have one big day a week when we go to town for shopping, medical appointments, and so on. It wipes my partner out for two days afterwards. By the end of the day, I’m exhausted, too. Interacting with people in crowded, noisy environments burns through my reserves a lot faster than people with less sensitive neurology. What we do on our ‘big day’ wouldn’t seem like much to most people. It’d be a day of errands that barely scratched the surface of their ability to cope. But when you’re starting with a finite amount of spoons, it takes its toll.

Once a month, we tend to do three things in our little village one after the other – visit the post office to collect our mail, take our bins to the local tip, and pay our rent. To do all three takes under an hour, but just about every time afterwards I say, “Well, yay for us for being fucking adults.” Why? Because it’s an achievement. Because even though I probably still have dishes in my sink and laundry in the hamper, we’ve got three things done that are vital to our survival.

I got told recently that I needed to lose some weight for my health. For several reasons, exercising at home is not an option, so my only choice was to leave the house. Given that I was essentially couch-bound by severe anxiety earlier this year, getting up and out has been a major challenge for me. Have I been doing it? Yes. How much weight have I lost? That’s not the point at all. This isn’t an inspiration porn story about a disabled person ‘overcoming’ their condition and riding a wave of success to able-parity. The thing that I celebrate is every time I put on my shoes and walk out the door despite the agoraphobia and anxiety waiting like wolves to bite me. I’m not overcoming anything. I’m gauging my level and weighing the cost versus benefit of doing something. And the days I don’t walk out that door? That’s fine. I’ve learned to accept that every day is different, and that some days I’m more capable than others of doing things.

For those who might think, oh, well the article writer didn’t mean people like you, she meant normal people, let me stop you right there. A big portion of the population has a disability. Sometimes it’s obvious, but a lot of the time, it really isn’t, and if you aren’t disabled right now, there’s a good chance you will be by old age. The great thing about the #adulting hashtag is that it’s about celebrating the little victories. It’s about giving yourself a high five for doing something difficult or unpleasant that you need to do for some reason or another. In a world that glorifies high successes but belittles everyday ones, it’s a breath of fresh air. I don’t think anyone who uses #adulting does it without a little dash of self-mockery, but that doesn’t mean it deserves to be labelled as worthless, either.

So, the next time you see a tweet or a post from someone celebrating the bare minimum, remember – you don’t know what it’s really like for them. They could be dealing with chronic pain, mental health issues, stress, grief, debt, or a toxic home or work life. They could be straining under a heavy course load, or struggling to find their direction in life. They could be sad, or lonely, or bored, and using the #adulting tag could be their way of cheering themselves up. Without being in their shoes, you really can’t tell. Sometimes, success is nailing a job interview, beating your personal best time, passing an exam or finding a partner, and sometimes, it’s achieving pants. Celebrating the latter doesn’t devalue the former, it just makes the world slightly less full of self-hatred, and for those of us who struggle to achieve the little things, it’s really fucking important on the path to self-acceptance. So, scroll past or block the #adulting tag if it annoys you, but don’t shit on those of us who choose to use it. A lot of us are shat on enough already.

Review: Episodes by Blaze Ginsberg

I really wanted to like this book. I liked Raising Blaze, his mother’s parental account. It’s a personal account by an autist, which I always want more of. I even liked the idea of the format, which I know from reviews here put some readers off. But this book’s unique style and presentation soured for me very quickly for one reason – the continual misogyny and male entitlement.

Blaze’s attitude to girls his own or near his own age is disturbing. If they’re a friend, he flies into rages if he so much as sees them talking to another guy. If they’re a new acquaintance, he immediately scouts them as a potential girlfriend and demands their number or email address, then flies into a fury again if they never reply/answer. (Spoiler: None of them ever do.) This jealousy and rage even extends to girls he’s never met or seen – if he meets someone new and finds out they have a sister, then discovers the sister has a boyfriend, he immediately ‘hates’ them. That’s right – hates. And not just in a passing annoyed way – he hates them enough for it to ruin his entire day or a song he liked at the time.

For those who might say ‘he’s a teenager’ or ‘he’s autistic, he can’t do regular relationships’, stop right now. This has nothing to do with age or autism, and everything to do with toxic masculinity. Blaze is the result of a society that tells men, especially quirky men, that they’re ‘entitled’ to whatever girl they like. That if they push hard enough the woman they want will say yes and become a reflection of their desires. Blaze’s incessant girlfriend hunt isn’t born of a desire for romance, intimacy or companionship. The book seems to make it quite clear – he wants a girlfriend because it’s the next achievement marker in life. That’s why he demands the numbers of every girl he meets. The individual woman doesn’t matter, because she’s just an object to be gained; a proof of his masculinity.

The book was written some time ago, so I hope that in the intervening years, Blaze has learned more about what it means to be a receptive, not aggressive partner. Because if he hasn’t… well, women deserve better.

autisticadvocacy:

zonderlingen:

I was miffed that there was no new ThinkGeek Neurodiversity shirt today, so I made a thing. Not that this needs to go on a shirt, but making the thing was fun and surprisingly stimmy and nice to look at so yeah, ‘s all good.

This is my first year after lots and lots of struggle and insecurity and stuff and finally understanding why my brain works the way it does. I’ve seen and experienced last year’s April. It was damn hurtful at times, even for someone pretty new to all the A$ fear mongering. Awareness? No, thanks. Acceptance? Yes! And celebrate the heck out of neurodivergence. So I made a thing that makes me happy. Maybe it makes someone else happy, too. 

[Brain made of tree branches, with the word neurodiversity below it.]

madeofpatterns:

casisautistic:

casisautistic:

Heya friendly reminder since it’s getting close to April

If you know someone who is autistic and love them dearly pls do NOT donate to autism speaks

If you care about autistic people at all do NOT donate to A$

If you do wanna donate tho to actually help autistic people, try ASAN (autistic self advocacy network) [autisticadvocacy.org/?theme=active]

Or Autism Women’s Network, or AASPIRE  (doing actually useful research).

madeofpatterns:

casisautistic:

casisautistic:

Heya friendly reminder since it’s getting close to April

If you know someone who is autistic and love them dearly pls do NOT donate to autism speaks

If you care about autistic people at all do NOT donate to A$

If you do wanna donate tho to actually help autistic people, try ASAN (autistic self advocacy network) [autisticadvocacy.org/?theme=active]

Or Autism Women’s Network, or AASPIRE  (doing actually useful research).

rubyetc:

tinymattresses:

hotcommunist:

rubyetc:

13/01 – contact

#well#this is nice#people are just trying to help#would you rather they didnt try to look after you?

tbh like. this comic is how it feel with anxiety on bad day tho. it’s like. plucking up the nerve to even talk is hard. having to make the first move to talk? harder. hardest of all is talking about something goin wrong in yr life.

it’s like. a constant struggle between wanting to talk/not being able/also not wanting to be a burden. which i *think* is the intended message of this comic.

one way of looking at it is like. anxiety is living in an isolating, solitary bubble. things are awful within the bubble, but you just sit there thinking WELL if i don’t move or speak to anyone or do anything then it can’t get any worse!

and training myself out of that and opening up is the hardest thing i have ever done.

thank you for explaining to me, now i understand more about these things my own brain has never done. i don’t know what i can do to be more of a help during these times but at least i know now?? ❤

Just seen the commentary, and Yep that was pretty much the intention. This drawing was about the self-perpetuated despair and frustration that I can’t always make use of the support I’m lucky to have. In some states, I feel paralysed and genuinely too frightened to verbalise the levels of distress I’m in, in case I upset someone or they don’t know how to help and I will then be responsible for causing them upset and worry. Trying to articulate to someone you love or care about that you might be at serious risk feels dangerous. It’s not about wanting people to go away or stop caring, it’s about the difficulty of allowing yourself to be caught by the safety net others can provide, and recognising that it’s better to do that pre-damage/pre-crisis than not making contact until you’re ringing from hospital feeling like a complete tit.

Society demands that we keep overcoming, overcoming, overcoming. But we don’t have to. Nowhere is it written that to be a really real human you have to brute force your way through your limits. Nowhere is it written that not doing so makes you less worthy. For most people, constantly refusing to acknowledge that you have limits is seen as a problem. We all have limits & we are supposed to acknowledge them, know where they are, work within them.