You might think they’re too young to understand. You might think they aren’t paying attention. You might even think they are incapable of awareness. You are wrong; your children are listening. Your…_____________________________
We are hearing and feeling and seeing, even when you don’t think we can.
Tag: actually autistic
functioning labels suck
I can talk. I can cook. I can read and write.
I often cannot comprehend things. I am often confused about nothing at all. I am frequently tired and not sure what in doing and not quite in control of my movements.
I can speak with people but I communicate weirdly. I cannot drive. I have very little focus unless I hit a point where I’m hyper focused. I do not think I could handle a job due to the anxiety and people and schedule.
loud noises terrify me. I am too often dissociated.
I might be labeled high functioning, but it doesn’t feel like I function typically enough to count as that. but I wouldn’t be labeled low functioning because I can “do stuff”.
high functioning does not fit me. low functioning does not fit me.
I don’t like functioning labels at all.
The problem with errorless learning
Content warning: This is a somewhat graphic post about ABA that links an even more graphic post.
There’s a particular variant on ABA called “errorless learning”, which works like this:
- You break a task down into small steps
- Then do discrete trials of the steps, over and over (If you want to know more about what discrete trials are, this post by a former ABA therapist explains it).
- When someone does it right, you reinforce in some way (either by praise or something concrete)
- When they do it wrong, you either ignore it, or prompt and reinforce a correct response
This is considered by many to be a kinder, gentler form of ABA than punishing incorrect responses. (And maybe in some sense it isn’t as bad as hitting someone, taking their food away, or shocking them. But that’s not the same as actually being respectful. Respecting someone takes much more than refraining from hitting them.)
Errorless learning is not actually a good or kind way to teach someone. It is profoundly disrespectful.
When you ignore responses that deviate from prompts, that means that you’re ignoring a human being whenever they did something unexpected or different from what you wanted them to do. It means you’re treating their unscripted responses as meaningless, and unworthy of any acknowledgment.
That’s not a good thing to do, even with actual errors. When people make mistakes, they’re still people, and they still need to be acknowledged as thinking people who are making choices and doing things.
Further – not every response that deviates from the response you’re trying to prompt is actually an incorrect response. There are a lot of reasons that someone might choose to do something else. Not all of them are a failure to understand; not all of them are incorrect in any meaningful sense.
For instance: they might be trying to communicate something meaningful:
- They might be putting the story pictures in a different order than you’re prompting, because they have made up a different story than the one you’re thinking of
- They might be giving you the boat instead of the apple when you say “give apple” because they are making a joke about the boat’s name being Apple
They might be intentionally defying you in a way that deserves respect:
- They may be of the opinion that they have better things to do than put the blue block in the blue box for the zillionth time
- They might know perfectly well what you mean by “give apple”, but think that eating it is a better idea
- They might be refusing to make eye contact because it hurts
They might be thinking of the task in a different way than you are:
- They might choosing to use a different hand position than the one you’re prompting, even if they understand what you want them to do
- For instance, they might have discovered that something else works better for them as a way of tying their shoes
- Or they might want to try different things
- Or the position you’re using might hurt
People do things for reasons, and those reasons aren’t reducible to antecedents and consequences. People have an inner life, and their thoughts matter. Even children. Even nonverbal children who need a lot of help doing things. Even adults with severe cognitive impairments. Even people who have no apparent language. All people think about things and make decisions, and those decisions are meaningful. All people deserve to have their thoughts and decisions acknowledged – including their mistakes.
When you teach someone something, acknowledge all their responses as meaningful, whether or not they are what you expected.
The best deodorant you will ever use
Seriously. ¼ teaspoon in each pit and you can sweat your ass off, totally stink-free for like 2 full days. It’s a natural anti-bacterial so those little fuckers won’t multiply and make you smell. Plus it’s cheaper and healthier than any deod you can buy anywhere.
Use equal parts of the following:
-corn starch
-baking soda
-coconut oil
-cocoa butterWith a few drops of whatever essential oil you want, for fragrance. Otherwise it basically just smells like nothing. I use tea tree oil & pine needle oil. Cuz they’re MANLY.
Note – It pretty much turns to liquid if it’s warmer than about 75 degrees. If you want to keep it solid, you can refrigerate it or add a little more corn starch.
Reblogging myself again, cuz I still use this and it’s still awesome
This is what I’ve been using for about a year now and it works wonders.
Not convinced it works? My fiance is literally the smelliest human being I’ve ever met when he’s been sweating all day. I made him some with tea tree oil and he now smells nice and mint-ish as the end of the day, even if he’s been outside working.
Not to mention it’s cheaper, smells better, better for you AND better for the environment to make your own 😀
My partner has chemical sensitivities. I am autistic, and have sensory sensitivities. I also have body odour that doesn’t really respond much to commercial deodorants, and this stuff works amazingly for me.
HOWEVER
Crunchy Betty, who came up with the recipe I use discovered, as I did, that certain people (me included) can have a skin reaction to corn starch. Use tapioca/arrowroot starch instead – it’s less likely to give you an itchy pit rash, and it works just as well.
Crunchy Betty’s recipe – we modified it for ease – we don’t infuse the neutral oils, we just put in a capful of lavender oil for scent/antibacterial properties. We also use olive oil in place of the sunflower oil. It takes all of five minutes to make, and you really don’t need to use much at a time. One batch should keep you going for months.
is there such a thing as scent stimming? Because if there is I’m doing it right now
I got a cup of coffee grinds and I’m just holding it under my nose and smelling it over and over again and it smells so nice!
I smell books while I read them if I’m stressed out. It’s totally a thing.
Books, yes, awesome, but tangelo peel. TANGELO PEEL. I eat the tangelo and then the peel is there and I hold it and bend it and smell it and it’s like the best citrussy smell in the world, for real.
imagine if there was an LGBT awareness day
and it was sponsored by an organization that treats non-hetero sexualities and non-cis gender identities as a disease, and that has paid for the legal defenses of parents who murder their gay children, and that promotes researching a cure that will fix us all and make us cis and straight
and most of the posts in the LGBT tag are “I am a mother/father/brother/sister of an LGBT person, and I want you to know that they’re human despite their disease.”
(posts by actual gay, bisexual, and trans* people are fewer, because there are fewer of us.)
and half of them are also about ‘the struggles of growing up with an LGBT family member’ and how ‘dealing with an LGBT child can put a strain on your marriage’
and some of them are links to ‘encouraging’ news about how scientists are close to finding the genes for gayness so you can abort your child in the womb if they test positive for gayness
when LGBT people speak up about this they are told they should be glad that people are raising awareness for them and that they aren’t, in any event, the ‘type of gay people’ the others are talking about
and now you know how I feel about Autism Awareness Day
As a queer girl who is also autistic, this is a really relevant metaphor to me.
“Autism is a mysterious condition”
you’re a mysterious condition
You’re mom’s a mysterious condition
Your mom’s face is a mysterious condition.
Your hair is a mysterious condition. You should see someone about that. (I think it’s full of secrets.)
cultural problem
I think a lot of the autistic and autism communities have this idea that… there’s a type of person called aspie. And those people aren’t ~real autistics~, they just are really good at academic geekery and bad at knowing that people are real.
But there’s this notion that *that* kind of autistic person isn’t really disabled, especially if they can pass.
And there’s a real cognitive subtype that actually *is* associated with receptive language problems, being good at academics and other abstracty things, and being able to pass if you push yourself in certain ways. But those people are disabled too.
And I think – those of us who have been pushed to see ourselves as that subtype when we’re not, when we’d never in a million years be capable of that, often end up being somewhat repulsed by people who *do* have that particular cognitive configuration.
And it’s not ok. Because the ableism we face isn’t their fault, and they’re no more free of it than we are. And we need to not be part of the problem.
The aspie hate things people say are not accurate descriptions of *anyone’s* cognitive type.
This is true and valid and I agree we need to stop eating our own.
Though I want to say something about the aspie subtype. As someone who benefited from that label (and no long IDs as an aspie), I’ve always felt that non-autistics and neurotypicals tend to value one subtype over the other. They usually are the once that sort of enforce this schism. Aspies are portrayed as goofy, cute, white boys who just want to fit in. People see they stereotype of them being good with math and computers as marketable. They seek out IT type aspies. Whilst everyone else gets passed over. The problem is many of them that are articulate, passing and have enough social reading, they end up buying this well constructed lie that they are far more valuable than non-speaking, chronically ill or non passing autists. So they end up throwing us under the bus.
This is not a new phenomena. Nevertheless it’s still fugging awful. My problem is not aspies but the NTs and the allistics that enforce and build this massive schism up. They want us in-fight, they want the aspies to talk over us over issues, they want the resentment. This hierarchy is artificial and awful and we need to destroy it.
So yes, they are disabled, but they also benefit a great many privileges too they need to realize themselves that we’re all drowning.
I have no problem personally with the term ‘Aspie’ or people who identify as such, but I stopped using it to identify myself because I realised that it came with baggage. Functioning label baggage. ‘Asperger’, for people who even know the term, tends to be equated with ‘high achiever’. It tends to imply that the person will go far if they find the right career, will succeed in academia if they find the right specialty. It implies a level of competence that I consistently failed to be able to live up to.
Now, my diagnosis was for Asperger Syndrome plus a handful of other things, and don’t get me wrong, I don’t think any diagnostician would diagnose me differently. I am highly verbal, highly literate, and as a child I learnt to pass to a degree and I live with that privilege/curse every day. But I failed out of my last year of high school and four further education attempts because the social stresses and expectations pushed my anxiety through the roof and into burnout so severe I was housebound. I had a handful of minimum wage jobs, one I know I was fired from because of my (then un-dxed) autism, and two that I probably stopped getting shifts from because of my short-term memory issues and my failure to grasp things at times that seemed easy or common sense to those around me.
‘Aspie’, with its connotations of competence behind a quirky, eccentric shell, made those around me – family, social workers, employment case managers – think that I just wasn’t trying hard enough. And that was crushing.
I realised when I started reading about other autistic people, that I always seemed to find more in common with ‘autistic’ rather than ‘Aspie’ autobiographers. Even if our actual life experiences were very different, ‘autistic’ authors seemed to write more about problems I faced, and seemed to more often have a world view closer to my own.
‘Aspie’ began to seem very limited, while ‘autistic’ encompassed the whole of my identity and disability. It had the flexibility I needed to cover my experience.
Add to that, I have a running tally for how many people I once loved and respected who have made the ‘arse burgers’ joke to my face when I disclosed. The first time was a very old and dear friend at my birthday dinner, a handful of months after my diagnosis. At the time, only a few people close to me knew. Every time someone makes that joke it catches me unguarded, and every time it hurts. I will never understand why people think that making that joke when someone is in such an incredibly vulnerable place is acceptable. Every time, it’s as if they think they’re the first person to think of it, and that they’re hilarious. At least the word ‘autistic’ gives me one less vulnerable place than if I use the word ‘Asperger’.
Listening to folks whose speech is unusual
This happens a lot, especially for autistic folks with a particular cognitive configuration:
- An autistic person says something in the most straightforward way they can think of
- But it’s far from the way most people say it
- And it doesn’t occur to other people that they’re being direct
- It’s seen as either the autistic person not understanding something, being presumptuous, or being hilarious
For instance:
- Alice and Nancy walk into a cafeteria, which is overflowing with different food options
- Alice (wanting a particular kind of food and not knowing how to find it): Where’s the food?
- Nancy: Umm, everywhere?
In this example, Nancy thought Alice was just being annoying or funny and didn’t understand what she was trying to communicate. This would have been better:
- Alice: Where’s the food?
- Nancy: Which food do you mean?
- Alice: Food!
- Nancy: Are you looking for something in particular?
- Alice: Food!
- Nancy: Your favorite food?
- Alice: My favorite food! Chocolate pie! Burger?
- Nancy: They have both of those things. We will see them when we go through the line.
Or:
- Nathan is discussing politics with his son, Arthur
- Nathan: What does the president do?
- Arthur: Important stuff. Not like you do.
- Nathan: You don’t think what I do is important?!
- (Nathan, telling the story later, uses it as an example of how kids have no filter)
- What Arthur actually meant was along the lines of “The president is a public figure with a lot of power, and everyone pays a lot of attention to what he says; that’s really different from how other people’s jobs work”.
This would have been better:
- Arthur: Important stuff. Not like you do.
- Nathan: What kind of important stuff?
- Arthur: My fellow Americans…
- Nathan: Important like speeches?
- Arthur: Yes. Speeches on TV.
- Nathan: I don’t make speeches on TV.
- Arthur: You go to the office.
- etc etc
tl; dr: When autistic people communicate things, we often sound strange. Don’t assume that we’re joking or being dismissive or cute just because the way we phrase things is very different from what would feel natural to you. Listen to what we’re actually saying.
me: you know how sometimes instead of a song you just get a spoken phrase stuck in your head and it repeats over and over
other people: no
me years later: oh i have echolalia