a blog!

autisticandpoor:

hello there! this is a new blog for autistics on a limited budget.

i will be posting things like cheap stim toys and where to find them, low spoons cooking and ways to make unfriendly foods into friendly ones, and hopefully some tutorials on making weighted objects.

please feel free to send in things you have discovered such as a good recipe or a store that has a lot of inexpensive stimmy stuff!

This post is for…

feralismyheart:

youneedacat:

  • Aspies who sometimes can’t speak, despite having no speech delay in early childhood.
  • Aspies who have permanently lost the ability to speak, despite having no speech delay in early childhood.
  • Aspies who are quiet and sensitive, not loud and blundering.
  • Aspies who sit out entire conversations because they can’t figure out where and how to join in, or how to initiate communication.
  • Aspies who stim, a lot, visibly, to the point people assume they’re “low functioning” and are surprised to hear them talk.
  • Aspies who can’t take care of themselves at all, despite what the DSM says about no significant delays in self-help skills.
  • Aspies who have the stereotypical high-tech computer job… and secretly wear diapers because they’re incontinent and always have been.
  • Aspies who are very echolalic, very ‘sensing’, other things more commonly associated with ‘auties’ than ‘aspies’.
  • Aspies with autistic catatonia who have gone from being considered very high functioning to very low functioning in a fairly rapid time span.
  • Aspies who are ‘passive’ or ‘aloof’ rather than ‘active but odd’ or ‘formal’.
  • Aspies who look exactly like many of Kanner’s original patients.
  • Aspies with extremely severe visual processing issues and other sensory issues, well beyond finding certain stimuli painful.
  • Aspies with something resembling visual agnosia.
  • Aspies with an IQ in the 70-90 range.
  • Aspies with an IQ slightly below 70, who got diagnosed with AS anyway (despite this being against the criteria) because some doctors will diagnose AS in people with, say, a 65 IQ, if every single other thing about them fits the Asperger criteria and not the autism one.
  • Aspies who did badly in school, and never made it to college, or did horribly in college or university and never got a degree.
  • Aspies who grew up partly or entirely in self-contained special ed classrooms or schools.
  • Aspies who find it easier to gesture than to speak.
  • Aspies who find body language easier to understand than understanding language.
  • Aspies who are extremely polite and careful about respecting people’s boundaries.
  • Aspies who are quiet and gentle and shy.
  • Aspies whose speech sounds like that of a very young child — they had no early delay in speech, technically, so they got an AS diagnosis, but their speech stalled at the age of five or so, and never got any better than that.  And somehow that doesn’t count as a speech delay because it happened too late.
  • Aspies who grew up being considered severely intellectually disabled, didn’t speak until they were 15 (after first learning to type at age 13), but didn’t have an autism diagnosis at the time.  And now they’re adults and are being diagnosed with Asperger’s because they can speak now and there’s nobody to corroborate their speech or diagnostic history so the doctor just doesn’t care about getting it right.  So now they’re officially an aspie.  (I’ve seen this happen more times than you’d be surprised by.)
  • Aspies who more than meet the criteria for autistic disorder, but aren’t being diagnosed with it because their doctors are ignoring the DSM entirely in favor of their ‘clinical judgement’ that someone has Asperger’s rather than autism based on seeing them as an adult.

Basically, this post is for ‘aspies’ who fit stereotypes normally reserved for ‘auties’, but had (or were presumed to have) no speech delay and (often) don’t meet the criteria for autistic disorder, so got diagnosed with Asperger’s.  Because such people are all over the place, yet when people say ‘aspie’ they never mean them, of course.  Even though they’re frigging everywhere.

so many of those examples are things i am / i deal with. i stopped calling myself an aspie a year ago (not long after i started) because of that, since it didn’t feel like it fit, because i felt alienated by the idea that being as ‘aspie’ meant i was supposed to function in certain ways that i almost never do. so i just call myself autistic.

anyway, i really like this post.

same. I call myself autistic because aspie doesn’t fit, even though it’s my official dx.

cultural problem

devilsmoon:

madeofpatterns:

I think a lot of the autistic and autism communities have this idea that… there’s a type of person called aspie. And those people aren’t ~real autistics~, they just are really good at academic geekery and bad at knowing that people are real.

But there’s this notion that *that* kind of autistic person isn’t really disabled, especially if they can pass.

And there’s a real cognitive subtype that actually *is* associated with receptive language problems, being good at academics and other abstracty things, and being able to pass if you push yourself in certain ways.  But those people are disabled too. 

And I think – those of us who have been pushed to see ourselves as that subtype when we’re not, when we’d never in a million years be capable of that, often end up being somewhat repulsed by people who *do* have that particular cognitive configuration.

And it’s not ok. Because the ableism we face isn’t their fault, and they’re no more free of it than we are. And we need to not be part of the problem.

The aspie hate things people say are not accurate descriptions of *anyone’s* cognitive type. 

This is true and valid and I agree we need to stop eating our own.

Though I want to say something about the aspie subtype. As someone who benefited from that label (and no long IDs as an aspie), I’ve always felt that non-autistics and neurotypicals tend to value one subtype over the other. They usually are the once that sort of enforce this schism. Aspies are portrayed as goofy, cute, white boys who just want to fit in. People see they stereotype of them being good with math and computers as marketable. They seek out IT type aspies. Whilst everyone else gets passed over. The problem is many of them that are articulate, passing and have enough social reading, they end up buying this well constructed lie that they are far more valuable than non-speaking, chronically ill or non passing autists. So they end up throwing us under the bus.

This is not a new phenomena. Nevertheless it’s still fugging awful. My problem is not aspies but the NTs and the allistics that enforce and build  this massive schism up. They want us in-fight, they want the aspies to talk over us over issues, they want  the resentment. This hierarchy is artificial and awful and we need to destroy it.

So yes, they are disabled, but they also benefit a great many privileges too they need to realize themselves that we’re all drowning.

I have no problem personally with the term ‘Aspie’ or people who identify as such, but I stopped using it to identify myself because I realised that it came with baggage. Functioning label baggage. ‘Asperger’, for people who even know the term, tends to be equated with ‘high achiever’. It tends to imply that the person will go far if they find the right career, will succeed in academia if they find the right specialty. It implies a level of competence that I consistently failed to be able to live up to.

Now, my diagnosis was for Asperger Syndrome plus a handful of other things, and don’t get me wrong, I don’t think any diagnostician would diagnose me differently. I am highly verbal, highly literate, and as a child I learnt to pass to a degree and I live with that privilege/curse every day. But I failed out of my last year of high school and four further education attempts because the social stresses and expectations pushed my anxiety through the roof and into burnout so severe I was housebound. I had a handful of minimum wage jobs, one I know I was fired from because of my (then un-dxed) autism, and two that I probably stopped getting shifts from because of my short-term memory issues and my failure to grasp things at times that seemed easy or common sense to those around me.

‘Aspie’, with its connotations of competence behind a quirky, eccentric shell, made those around me – family, social workers, employment case managers – think that I just wasn’t trying hard enough. And that was crushing.

I realised when I started reading about other autistic people, that I always seemed to find more in common with ‘autistic’ rather than ‘Aspie’ autobiographers. Even if our actual life experiences were very different, ‘autistic’ authors seemed to write more about problems I faced, and seemed to more often have a world view closer to my own.

‘Aspie’ began to seem very limited, while ‘autistic’ encompassed the whole of my identity and disability. It had the flexibility I needed to cover my experience.

Add to that, I have a running tally for how many people I once loved and respected who have made the ‘arse burgers’ joke to my face when I disclosed. The first time was a very old and dear friend at my birthday dinner, a handful of months after my diagnosis. At the time, only a few people close to me knew. Every time someone makes that joke it catches me unguarded, and every time it hurts. I will never understand why people think that making that joke when someone is in such an incredibly vulnerable place is acceptable. Every time, it’s as if they think they’re the first person to think of it, and that they’re hilarious. At least the word ‘autistic’ gives me one less vulnerable place than if I use the word ‘Asperger’.